Neurofibromatosis ! “ The most common disorder you’ve never heard of”. This was not suppose to happen to me. From what I thought I just had a struggle in school and that my so called Cafe Ola spots where just birthmarks, I just had over 50 of them. There were no other signs. How was I born with this disorder and not made aware of it until the age ten. Well here we go the story from where it all became real. I was starting the fourth grade at a new school Cross Creek Charter Academy. This was going to be a new start of making friends . My old school has been just trouble for me. Got teased and bullied and did not have much friends. Now it is my turn to restart . I was the chubby kid and I wanted to change that , so my mom set up appointments
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I was getting materials to help and talking to dietitians and the healthy weight doctor . Was about 4 appointments in everything is going really good. The doctor came in to see how I was doing and to make sure everything was going well , at that time it was nothing to worry about except getting my weight off. So after he realized everything was okay, he gave me this pamphlet. that said “Neurofibromatosis” on it. I was thinking i'm my head “what the heck is this”? So he starts to explain ‘’ I think your daughter Courtney has this disorder called Neurofibromatosis NF for short, there is a clinic right in this building I think you should have her checked out. There are already more than 2 signs that I can see she has Learning disabilities, the spots, and the coordination issues and these are all common with kids that have NF.” He also told us he wanted us to go home to think about it and to not look it up online because the internet does not explain very well how NF look on some …show more content…
When we went to the appointment, he did everything he had to do check my ears to make sure my hearing was in check. When he had to do his last check it was to check my throat. When he checked it, he said he saw something and has no idea what it could be, so he sent my mom and I into a new room to get a closer look to see if he can figure out what the little bump was. The way he had to do it was putting a scope up my nose to get a closer look. It was really painful . I was a pain. With it being so painful the doctor had to give me a break He told me that we need to have surgery to get some of the tissue in your nose out so it is not as painful when I put this In your nose. After the break he tried again after naming my nose tissue so it would not hurt as bad. He looked through the cope and noticed that it looked like a grape that was in my throat, but he realized whatever it was it was laying on my vocal
I was getting materials to help and talking to dietitians and the healthy weight doctor . Was about 4 appointments in everything is going really good. The doctor came in to see how I was doing and to make sure everything was going well , at that time it was nothing to worry about except getting my weight off. So after he realized everything was okay, he gave me this pamphlet. that said “Neurofibromatosis” on it. I was thinking i'm my head “what the heck is this”? So he starts to explain ‘’ I think your daughter Courtney has this disorder called Neurofibromatosis NF for short, there is a clinic right in this building I think you should have her checked out. There are already more than 2 signs that I can see she has Learning disabilities, the spots, and the coordination issues and these are all common with kids that have NF.” He also told us he wanted us to go home to think about it and to not look it up online because the internet does not explain very well how NF look on some …show more content…
When we went to the appointment, he did everything he had to do check my ears to make sure my hearing was in check. When he had to do his last check it was to check my throat. When he checked it, he said he saw something and has no idea what it could be, so he sent my mom and I into a new room to get a closer look to see if he can figure out what the little bump was. The way he had to do it was putting a scope up my nose to get a closer look. It was really painful . I was a pain. With it being so painful the doctor had to give me a break He told me that we need to have surgery to get some of the tissue in your nose out so it is not as painful when I put this In your nose. After the break he tried again after naming my nose tissue so it would not hurt as bad. He looked through the cope and noticed that it looked like a grape that was in my throat, but he realized whatever it was it was laying on my vocal