Rett's Syndrome Case Studies

Improved Essays
Issue:
Beth was 13 years old at the time of the case. Beth had been diagnosed with Rett’s syndrome which is a progressive disorder. In Beth’s case the Rett’s caused Beth to have little motor control such that she was confined to a wheelchair. Beth was non- verbal and used technology to communicate. Her cognitive abilities were at a preschool level with Beth being unable to read or understand numbers.
Up until the time of the case, Beth was receiving Special Education services and relied on a 1:1 aid to access an extremely modified curriculum within the general education classroom. In 1997, her IEP team recommended she be placed in an Educational Life Skills (ELS) program due to not making progress on her IEP goals. The students in the
…show more content…
The IEP team is then responsible for laying out when and to what extent the child is out of the LRE. IDEA entitles all children with disabilities to access public education, and must provide the child with a Free and Appropriate Public Education (FAPE). Due to Beth not making progress on goals, Beth was receiving few benefits from the mainstream setting. The IEP proposed a setting that would still provide access to non-disabled peers to the extent that was most appropriate for her to access her education in a way that was most meaningful to her as well as allow for academic progress. The Appeals Court stated that it appeared “the parents had confused the FAPE requirement with IDEA's Least Restrictive Environment (LRE) requirement.” The parents were under the impression the mainstream setting was providing Beth some educational benefit and that was enough to continue on that setting. Obviously, the parents in this case were fighting for what they believed best for their daughter. However, they were overlooking the appropriateness of the setting and not considering they were hampering their daughter’s educational progress by disagreeing with the proposal to place her in the ELS class. The US Court of Appeals disagreed with the parents and found she was not benefitting in any way from her current instruction and it would be doing a disservice …show more content…
Beth’s parents seem to confuse LRE and FAPE, seeming to believe that the least restrictive environment, in this case the general education class, is the only appropriate option. However, the United States Court of Appeals agreed with both the district court and hearing officer, saying that the school district’s recommendation to move Beth to the ELS class is an example of an appropriate education.
“So long as the regular classroom confers ‘some educational benefit’ to Beth, they argue…the school district cannot remove her from that setting. This language is misplaced. The Rowley holding applies only to the school district’s responsibility to provide a FAPE — a requirement that analyzes the appropriateness of the district’s placement — not the appropriateness of the ELS alternatives, including the regular education classroom” (See Reference 3). The court here understands the commitment and dedication of the family to their daughter’s case, yet also recognizes that they do not understand to the fullest extent the benefit of a general education class as compared to a contained

Related Documents

  • Decent Essays

    Standard Base Iep's

    • 315 Words
    • 2 Pages

    Standard base IEP’s allows teachers, students and parents to look at the student’s current progress verse traditional when you focus on the student’s strengths and challenges. Standard Base IEP’s allows for direction, which is centralized by points of achievement. This offers the IEP team a visual path to what the student may need to work on and modes of assistance that can be offered. Traditional IEP’s were broader and did not centralize the needs of the students.…

    • 315 Words
    • 2 Pages
    Decent Essays
  • Improved Essays

    The 1980 court case, Armstrong V. Kline, drew from parents of children with exceptionalities becoming upset with the education system’s 180-day school year rule1. Beginning in January of 1980, they decided that enough was enough and they needed to do something before summer vacation came so, their child/children would not lose everything they learned during the school year1. The parents took on the court case, filing three class action lawsuits, all of which were against Caryl Kline, the secretary of education and chief official of the Department of Education1. The result of this particular case relieved me but, the fact it had to become a court case, I found to be absolutely ridiculous. Also, the terminology they used while describing the…

    • 751 Words
    • 4 Pages
    Improved Essays
  • Improved Essays

    ichael explains his case in a creative way. He has Down syndrome when the chromosomes came to make him, a normal chromosome broke, the broken piece moved and struck onto another chromosome. Its called spontaneous translocation. No one knows why this happens or how to prevent it. He starts to talk like how he is like everyone else.…

    • 642 Words
    • 3 Pages
    Improved Essays
  • Improved Essays

    Ethical Case Dilemma

    • 573 Words
    • 3 Pages

    The ethical case dilemma begins with Mr. Rodriguez at the Elm Elementary school and the placement of Sally, a student. Due to the lack of one child he needs to get additional help, (with 31 students and a need for 32 students), and according to the district of Elm Elementary, the school does not meet the necessary requirements to gain one additional ESE teacher he would like to have. The school has 31 students in special education, a fairly considerable quantity of students but not enough for “extra help”, and according to this case Sally may be possibly be identified too early for an emotional and/or behavioral EBD label to fill the place to attain the 32nd student. Since there seems to be policy and resource limitations, Sally’s situation…

    • 573 Words
    • 3 Pages
    Improved Essays
  • Improved Essays

    Rett syndrome was discovered and named after Dr Andreas Rett. He originally noted that the syndrome was of a progressive nature based on the evidence that a child with the disorder seems to develop normally in the first 6-18 months of development. On April 8, 1983 he organized the first symposium covering Rett syndrome, inviting attendees from Europe and Japan. Upon discovery, Rett syndrome was once thought to be caused by degeneration of the central nervous system. However, it is now known that the disorder is a dysfunction of the aminergic neurons of the brainstem, starting during early infancy.…

    • 225 Words
    • 1 Pages
    Improved Essays
  • Great Essays

    What defines a bully? (pause) a bully is an individual who uses their power to harm or intimidate the powerless. harassing an inferior, who is forced to comply. On April 27th, 2017, Carson Connors was arrested. And by means of Carson’s arrest, the bully prospered.…

    • 1258 Words
    • 6 Pages
    Great Essays
  • Improved Essays

    Rett Syndrome is an uncommon neurodevelopmental disorder that is first discovered when a child is still an infant. This disorder is mostly found in girls, rarely is it ever found in boys. Rett Syndrome cannot be inherited from an early on ancestor, and statistically this syndrome affects one in every 10,000 to 20,000 children. In 1966 an Austrian physician, Dr. Andreas Rett was the first person to have ever recorded anything about this disorder.…

    • 367 Words
    • 2 Pages
    Improved Essays
  • Improved Essays

    As for treatments, there is no cure to this disease. There are some treatments available that focus on helping a girl with Rett Syndrome live the best life she possibly can with her condition. “Physical therapy can improve mobility, speech therapy can improve some language issues, and occupational therapy can help girls perform common daily activities independently. Physical therapists can enhance the child’s physical fitness, and can reduce some of the secondary dangers of immobility. Speech therapists can increase expressive communication of the girl with the disorder by using different assistive augmentative communication devices.…

    • 1114 Words
    • 4 Pages
    Improved Essays
  • Decent Essays

    In the analysis, the female child was placed in a special education self contain classroom. The professional educators followed her new IEP. Further more, she was able to transition into general education classes. The female child graduated with a diploma in 2012 instead of a certificate. She is working part time in a office using a computer and filing information and answering the phones.…

    • 72 Words
    • 1 Pages
    Decent Essays
  • Improved Essays

    Rhett Disease Case Study

    • 795 Words
    • 4 Pages

    Before learning about Physical Education and Kinesiology, I did not have a mindset of learning about neurodevelopmental disorders. My heart and goals were learning about Physical Therapy. After a while, my mindset and goal changed. When looking more into the PEAK major and I took the Occupational Therapy route.…

    • 795 Words
    • 4 Pages
    Improved Essays
  • Great Essays

    The situation begins unfortunate from the start. Bertha, the person who is in charge of testing children for special education placement in the school district lacked communication with Tyler’s mother Cindy. Bertha would not answer and return emails, phone calls, and consistently would change the dates to meet Cindy to discuss concerns about her son Tyler’s education. This caused Cindy to go visit the elementary school that Tyler would be attending. Cindy has a very busy schedule and since she had time to spare, she thought that this would be a good opportunity.…

    • 1403 Words
    • 6 Pages
    Great Essays
  • Improved Essays

    Do the parents have to pay for the education if their disabled child attends a public school? One of the provisions of IDEA (1990) is assure the right to a free and appropriate education in public schools to children with disabilities between ages of three to twenty-one. 4. Why is a regular education teacher included in the IEP (Individual Education Plan) team?…

    • 1319 Words
    • 6 Pages
    Improved Essays
  • Improved Essays

    There is a small window of time to get to these special students in order to get an optimal results. If too much time goes by and a student is getting older can make it harder to have a positive enriched intervention for students. That is why it is important to begin establishing academic needs at an earlier age to get the best results. The most commonly cited benefit of RTI was the ability to identify students’ academic needs early, leading to targeted services being provided quickly. (Swanson et al.…

    • 562 Words
    • 3 Pages
    Improved Essays
  • Great Essays

    The Individuals with Disabilities Education Act (IDEA) plays a significant role in determining certain points of a child with a disability’s life. Response to intervention (RTI) determines the student’s behavior requirements, which is supported by three significant tiers. Additionally, the evaluation and eligibility of a student is also crucial in creating a successful life and future for the individual. The student would not have various opportunities throughout his or her lifetime without the necessary placement. Discipline is another key factor in a student’s education and professionals are required to follow the school’s procedure of disciplining.…

    • 1773 Words
    • 8 Pages
    Great Essays
  • Improved Essays

    Establishment Clause

    • 1137 Words
    • 5 Pages

    Mr. Katz demonstrated lack of skill in clearly communicating district plans to all stakeholders (Indiana Content Standards for Educators District Level Standard 4.2) by forging ahead with his program to emphasize one specific religion at each of the five elementary schools not housing special education students. Mr. Katz would be advised to revisit his school law textbook and notes before creating such a plan. A reminder of the definition of the Establishment Clause would have reminded him that a school may not place emphasis on any single religion. The Establishment Clause in the First Amendment states, “Congress shall make no law respecting an establishment of religion, or prohibiting the free exercise thereof” (First Amendment, U.S. Constitution).…

    • 1137 Words
    • 5 Pages
    Improved Essays