As for treatments, there is no cure to this disease. There are some treatments available that focus on helping a girl with Rett Syndrome live the best life she possibly can with her condition. “Physical therapy can improve mobility, speech therapy can improve some language issues, and occupational therapy can help girls perform common daily activities independently. Physical therapists can enhance the child’s physical fitness, and can reduce some of the secondary dangers of immobility. Speech therapists can increase expressive communication of the girl with the disorder by using different assistive augmentative communication devices. They can also help with overcoming basic motor tasks, such as, apraxia. Occupational therapists help with overcoming
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They can’t necessarily teach them to do all of those tasks independently, but they can however make those tasks attainable. Also, they provide ways to help a person with Retts increase the use of their hands and body,” states Joav Merrick. According to Meir Lotan, PhD, “music therapy could be helpful as well. Music therapists use musical skills like singing and improvisation to build rapport with the child to get them to engage in nonverbal forms communication. Music therapy can offer a child new opportunities to communicate. There are also some medications the individual with Rett Syndrome can take. They are not curative, but they can relieve some of the symptoms and alleviate sources of distress the child experiences.” According to The Encyclopedia of Women’s Health, in 2007 researchers announced that they have been able to reverse the condition in mice by means of genetic engineering, and it is hoped that one day this will work on humans …show more content…
I asked her, “What treatments are there for Retts?” Teresa answered, “Physical and Occupational Therapy. Therapies to develop skills using eye gaze technology. No medical treatments like surgeries or medications. There are multiple clinical trials underway.” Next I asked, “Did you have to make any accommodations to your home?” To this she replied, “Nope. We 're lucky. She is able to walk and she can climb stairs with assistance. Many girls with Rett Syndrome aren 't so fortunate.” I asked her, “Do you do any exercises with Estelle to advance her cognitive learning skills?” Teresa replied, “Not really at home. At school they continue to work with her on using her eye gaze computer and switches for communication and educational testing.” Another question I asked was, “How does the school work with her to help her learn?” “Grantwood AEA works with them to continue trying new ways for her to communicate and also improve her mobility. The HS Construction Engineering class built a set of steps identical to the rise of the bus steps so she can practice climbing up and down them everyday in the class room. That helped a ton and she is able to climb the bus stairs with minimal assistance now,” Teresa replied. Lastly I asked her, “Did her development seem normal at first then change? How?” Her response was, “Yes. We didn 't have any concerns until she wasn 't walking by age two. With lots of hard work on her
They can’t necessarily teach them to do all of those tasks independently, but they can however make those tasks attainable. Also, they provide ways to help a person with Retts increase the use of their hands and body,” states Joav Merrick. According to Meir Lotan, PhD, “music therapy could be helpful as well. Music therapists use musical skills like singing and improvisation to build rapport with the child to get them to engage in nonverbal forms communication. Music therapy can offer a child new opportunities to communicate. There are also some medications the individual with Rett Syndrome can take. They are not curative, but they can relieve some of the symptoms and alleviate sources of distress the child experiences.” According to The Encyclopedia of Women’s Health, in 2007 researchers announced that they have been able to reverse the condition in mice by means of genetic engineering, and it is hoped that one day this will work on humans …show more content…
I asked her, “What treatments are there for Retts?” Teresa answered, “Physical and Occupational Therapy. Therapies to develop skills using eye gaze technology. No medical treatments like surgeries or medications. There are multiple clinical trials underway.” Next I asked, “Did you have to make any accommodations to your home?” To this she replied, “Nope. We 're lucky. She is able to walk and she can climb stairs with assistance. Many girls with Rett Syndrome aren 't so fortunate.” I asked her, “Do you do any exercises with Estelle to advance her cognitive learning skills?” Teresa replied, “Not really at home. At school they continue to work with her on using her eye gaze computer and switches for communication and educational testing.” Another question I asked was, “How does the school work with her to help her learn?” “Grantwood AEA works with them to continue trying new ways for her to communicate and also improve her mobility. The HS Construction Engineering class built a set of steps identical to the rise of the bus steps so she can practice climbing up and down them everyday in the class room. That helped a ton and she is able to climb the bus stairs with minimal assistance now,” Teresa replied. Lastly I asked her, “Did her development seem normal at first then change? How?” Her response was, “Yes. We didn 't have any concerns until she wasn 't walking by age two. With lots of hard work on her