Pros And Cons Of Spinal Muscular Atrophy

Improved Essays
Health care technology advancements has allowed there to be greater access to more efficient and improved medical procedures, testing and life changing medical treatments. Spinal Muscular Atrophy, a congenital disease that would shorten the life expectancy of pediatric patients has now been extended due to new medical technology that support activities of daily living, such as breathing. Another great medical advancement that not only extends but also improves the quality of life of children with Spinal Muscular Atrophy is the release of the newly FDA approved drug Spinraza™ . The FDA approval of this new drug was followed by the crushing news of the cost of treatment amounting to $250,000 per year of treatment. Spinraza™ is not the first drug or medical treatment to be approved by the FDA just to be limited in access to those in need of treatment due to high medical cost that health insurance companies, private or public, choose not to cover. …show more content…
This dilemma brings about the ongoing question of how health insurance companies justify approving or denying coverage for a medical treatment that can improve quality or life and even save the lives of

Related Documents

  • Improved Essays

    In Atul Gawande’s Ted Talk, “How do we heal medicine,” he expresses a concerned yet hopeful tone which explicitly describes the disturbing comparison between the cost of medical care and the lack of care patients are paying for. Even though there is an advancement in medical technology and medicine itself, most medical professionals increase the cost of this machinery to increase their own profit, without looking at the effects of the medicines used on a patient. Dr. Gawande emphasizes how modern medicine today needs patchwork when it comes to treating all patients equally and substantially. The care of all patients should be accounted for, and the treatments for their needs is at a cost that they can afford. Although, most treatments can be…

    • 294 Words
    • 2 Pages
    Improved Essays
  • Improved Essays

    Many families struggle to support their families, close friends and themselves health wise due to money issues. In John Q , a father of a son who desperately needs a new heart, is willing to go through hell and back for his son to survive. The “ Social Justice Issue” is represented as a very low, uncaring system towards their patients. As a country, we people expect a system to care for and to protect us. Everyone deserves to live happy and healthy life.…

    • 369 Words
    • 2 Pages
    Improved Essays
  • Improved Essays

    Natalie Dixon, information generated from government and scholastic sources have previously highlighted the continuing disparity in health care in general. Across the globe there are contrasting policies and systems that have been implemented to meet the requirements of those nations constituents. Some are remarkable in their approach to delivering health care, the quality of care and their specific level of government control. The Affordable Care Act had both its positives and negatives in its designed approach to a continuing issue, but the fact remains and has been documented that for every action there is a reaction. Some of the negativities have complicated the issue, but then again it all depends on which side of the bandwagon one wishes to address or champion in their approach.…

    • 533 Words
    • 3 Pages
    Improved Essays
  • Improved Essays

    Today many Americans are concern with health care. This includes individuals that have health care insurance and those who cannot afford health insurance. Unfortunately, health care premiums are rising, and coverage is limited. The care and coverage we are receiving as individuals is poor. While the Affordable Act was meant to increase the quality of care individuals receive and to increase the number of individuals insured, today healthcare is not what it was meant to accomplish.…

    • 800 Words
    • 4 Pages
    Improved Essays
  • Improved Essays

    The Controversy of ObamaCare I. What is ObamaCare? ObamaCare is the casual name for The Patient Protection and Affordable Care Act, a health change law set apart on March 23, 2010, by President Barack Obama. - ObamaCare (the Affordable Care Act) is a US social protection change law that develops and improves access to care and checks spending through bearings and expenses. The Affordable Care Act's basic focus is on outfitting more Americans with access to sensible therapeutic scope, upgrading the way of restorative administrations and medicinal scope, controlling the social insurance scope industry, and lessening human administrations spending in the US.…

    • 410 Words
    • 2 Pages
    Improved Essays
  • Superior Essays

    In 2010, The Affordable Care Act, commonly known as Obamacare, was implemented across the United States to address the foremost issues in today’s Healthcare. These problems include lack of accessibility to quality healthcare, growing cost of care, and quality of care. While the affordable care act addresses concern of access to care for the underprivileged, it creates other new complications regarding cost and quality. Obamacare has succeeded in making care more accessible and now millions of Americans are now newly insured under government subsidized healthcare exchanges. However, the cost of care for those previously insured from either their employer or privately has increased dramatically.…

    • 1942 Words
    • 8 Pages
    Superior Essays
  • Improved Essays

    Granted the insurance company is out to make a profit, but the high costs of insurance and the refusal to insure individuals with pre-existing conditions is unconscionable. The choice of insurance companies to follow this trend goes against five of the seven ethical principles that should be considered when making ethical decisions. Autonomy for individuals is removed when the choice of affordable full coverage insurance is removed by the high cost or downright refusal of insurance to cover them. Beneficence, the intent to aid others and avoid harm, is not shown by the…

    • 1305 Words
    • 5 Pages
    Improved Essays
  • Improved Essays

    The first thing to take into account is the fact that healthcare accounts for approximately 6% of the U.S. economy. The Affordable Care Act, better known as Obamacare, or other unsavory names is actually in my mind making the medical field and the availability of care for patients more difficult. Regardless of its benefits to some patients, the Obamacare is making things much more difficult for doctors, nurses and anyone in medicine. It has done nothing but increase paperwork and costs, and has done nothing to increase the quality of care.…

    • 769 Words
    • 4 Pages
    Improved Essays
  • Improved Essays

    For this forum I had a discussion with a woman who is 70 and her initials are N.H. While discussing Medicare, Medicaid and the affordable health Care Act, she expressed her concerns with me. She said that with Medicare the rising cost for medicine is something that extremely concerning since she is retired and only has so much money to live on a month. With Medicare she really didn’t have much concerns since her children were it to coverage her grandchildren. When talking about the Affordable Health Care Act, her biggest concern was that some doctors don’t accept Obamacare.…

    • 374 Words
    • 2 Pages
    Improved Essays
  • Improved Essays

    The U.S. Affordable Care Act has three main factors that support the system. The reformed healthcare system can be compared to three-legged stool because it consists of three factors which include, insurance companies must sell coverage to people with pre-existing conditions as well as subsidies to help with premiums to ensure that everyone has coverage. After the affordable care act was implemented the rates of the uninsured declined, yet there are still millions without insurance with punishments to people who want to opt out of insurance. Obamacare doesn’t control the cost of medical insurance rather the cost is based on the completion among private insurance sectors. Even with this recent health care reform, the United States health…

    • 403 Words
    • 2 Pages
    Improved Essays
  • Improved Essays

    Before 2010, millions of Americans suffered from the issues of not having health insurance. The Affordable Care Act, also known as Obamacare, was signed into law with high hopes of reducing the number of uninsured by making health insurance available to all U.S. citizens regardless of having an employer or not and living with a pre-existing condition while reducing additional healthcare spending outside the deductibles and premiums. Even with the best intentions to solve the problem of uninsured Americans, another problem surfaced from the Act, the cost. Since the current Federal Health care system burdens millions of Americans with unaffordable cost, which are caused by rising prices in pharmaceuticals, hospital care, and inadequate health…

    • 825 Words
    • 4 Pages
    Improved Essays
  • Great Essays

    How uncompensated care cost can be affected by the ACC Article 25 of the Universal declaration of Human rights says, “Everyone has the right to a standard of living adequate for the health and well-being of himself and of his family, including medical care.” Since President Barack Obama took the charge of the United States, one of his main goals was to provide health care to almost everyone, especially those people who were uninsured. From an economic perspective, it was going to be a challenge to both reduce the uncompensated care cost of the uninsured people and provide health care to the entire nation. However, since the ACC (Affordable Care Act) went into effect in January of 2014, there have been positive results regarding to what the…

    • 793 Words
    • 4 Pages
    Great Essays
  • Superior Essays

    Health care in America is a controversial topic that has divided the United states similar to how it was during the civil war. Some people think that everyone should have access health care so more people can be allowed to live if they get checked and screened early enough. Others think that if some people can not afford it then they shouldn't have it. Not having health care can be for many reasons; not enough money, their job doesn’t provide it, or they are completely turned away because of their race. Everyone in America should have access to health care regardless of their socioeconomic status.…

    • 1570 Words
    • 7 Pages
    Superior Essays
  • Improved Essays

    Introduction The passage of the Affordable Care Act changed the delivery of health care in the United States. However, since the passage of the Affordable Care Act, multiple lawsuits against the federal government have been filed. On June 25th 2015, the Supreme Court ruled on the Affordable Care Act in a 6-3 decision stating, “Congressed passed the Affordable Care Act to improve health insurance markets, not destroy them. If at all possible, we must interpret the Act in a way that is consistent with the former” (CNN, 2015, para. 5).…

    • 1139 Words
    • 5 Pages
    Improved Essays
  • Great Essays

    The right to affordable health care is as sacrosanct as the right to be free, if not more. The most important issue is making medical care a right for everyone at an affordable price. American health care has an insurance-based system; thus, to get affordable and efficient medical help, you should be insured. Currently, there are about 44 million uninsured Americans. According to Elizabeth Bradley, the author of the book The American Health Care Paradox, the paradox of today’s system is that “United States spends so much on health care but continues to lag behind in health outcomes” (33).…

    • 1634 Words
    • 7 Pages
    Great Essays