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30 Cards in this Set

  • Front
  • Back
Key Questions when hit by illness (Helman 2007) (7)
What has happened?
Why has this happened?
Why now?
Why me?
What should I do/who should I turn to?
What if nothing is done?
How will this affect others?
People ascribe a meaning to there story - there are internalising and externalising explanations. Externalising ones often take the form of a narrative or story.

Narratives can be culturally influenced and defined
Young



Becker
What is normal/abnormal and expected/unexpected and treatable/untreatable may defined by social class, education etc.
Fox ('Regionville')

Lower social classes adopt a more 'functional' definition of health
EMs
Consultation is 'a transaction between lay and medical EMs'
Kleinman (1980)
A successful consultation requires a consensus between the patient and doctor ('negotiation')
Webb
Culture is a lens transmitted from generation to generation
Helman (2007)
Lay people use medical jargon they perceive to understand in the wrong way (that study where they got the stomach wrong, thinking antibiotics work against viruses, didn't know the difference between a boyle and a spot etc.)
BOYLE


Note: LAY terms about spirits and ghosts, hot and cold may be misinterpreted by doctors!
For treatments to be acceptable to patients, it must make sense in terms of their EMs (especially when it's unpleasant and they feel fine at the moment)

UK non-compliance estimated to be 30%
Helman (2007)
Term for when one culture imposes their own cultural values on another
Cultural counter-transference (Helman)
Somatisation definition (state who came up with it)
The translation of dysphoric affect to complaints of physical symptoms, and even illnesses (KLEINMAN)
Who pointed this out:
Cancer seen as a monster that attacks you from within and destroys you
Heart disease metaphors much less dramatic, and more mechanical
Weiss
The metaphors peopele ascribe to their illnesses are a way of experiencing and expressing events - they are often a feature of sudent, traumatic events that interrupt the normal flow of human events and may contribute to the nocebo effect
Becker
3 levels of cultural behaviour (name and the levels)
Hall's 'Primary level culture'
What people say they will do
What they actually do
The belief systems which underlies their behaviour
EMs provide explanations for five principle aspects of illness. Who said this and what are they
Helman 2007
Aetiology, timing of onset, pathophysiological process, natural history and severity
Lay sources of information heavily impact illness beliefs and behaviour
Greenhalgh 1998
Nature used to be prized for its medicinal qualities (sanatoria) then it changed, but now again nature seen as the antidote to the invisible pollution and factory fumes
Helman 2003
Stories in medicine:
Storytelling as healing, healing as storytelling (argues medical sciences is at its base a complex form of storytelling)
BRODY 2003

'Without a storehouse of case exemplars to draw upon, medicine could neither be taught nor practiced'
Doctor should NOT assume the medical story IS the patient's story
Hunter 1991
Stories are an essential part as a means of perceiving how scientific knowledge (general) can be applied to the individual (paprticular)
Hunter 1991
The placebo illustrates the importance of the illness narrative in healing
Brody 1980
Illness experience needs to be given an explanation that the patient finds acceptable
The patient must perceive that she is surrounded by, and can rely upon, a group of caring individuals
patient must achieve a sense of mastery/control over the illenss
Brody 1980
ASSURING patients that the treatment will work, and transmitting positive messages about the diagnosis may result in twice the cure rate compared to noncomittal colleagues
Thomas 87

'Sustained partnership'
Attributes of causation are often linked to past transgressions in religious stories
Brody 1980
Even if there is no cure available, the ability to prognosticate accurately, to tell the story of the future of the illness, maintain a sense of control may, symbolically if not pharmacologiclaly, lead to enhanced healing
Brody 1980
Being a patient for a change can open the eyes of doctors
Kirby prostate surgery (Guardian 2013)
Giving the illness a name is comforting - it makes 'the thing' an existence apart from the person which can then be struggled against
Brody
Patients come to physicians with broken stories as much as with broken bones and broken bodies.

The successful outcome will demand the joint construction of the narrative
Brody 1980
If a patient agrees to quit smoking, but cannot construct for herself a coherent and convincing narrative of her future life without cigarettes, it is improbable she will quit
Brody
Characteristics of a story (and author)
Greenhalgh
Runs through time
Requires a narrator and listener
Focuses on characters
Includes an emotional dimension
Has a plot and invites interpretation
Do not think every problem has a story shaped solution. They should be used when they have the most 'added value'
Greenhalgh