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30 Cards in this Set
- Front
- Back
Key Questions when hit by illness (Helman 2007) (7)
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What has happened?
Why has this happened? Why now? Why me? What should I do/who should I turn to? What if nothing is done? How will this affect others? |
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People ascribe a meaning to there story - there are internalising and externalising explanations. Externalising ones often take the form of a narrative or story.
Narratives can be culturally influenced and defined |
Young
Becker |
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What is normal/abnormal and expected/unexpected and treatable/untreatable may defined by social class, education etc.
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Fox ('Regionville')
Lower social classes adopt a more 'functional' definition of health |
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EMs
Consultation is 'a transaction between lay and medical EMs' |
Kleinman (1980)
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A successful consultation requires a consensus between the patient and doctor ('negotiation')
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Webb
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Culture is a lens transmitted from generation to generation
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Helman (2007)
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Lay people use medical jargon they perceive to understand in the wrong way (that study where they got the stomach wrong, thinking antibiotics work against viruses, didn't know the difference between a boyle and a spot etc.)
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BOYLE
Note: LAY terms about spirits and ghosts, hot and cold may be misinterpreted by doctors! |
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For treatments to be acceptable to patients, it must make sense in terms of their EMs (especially when it's unpleasant and they feel fine at the moment)
UK non-compliance estimated to be 30% |
Helman (2007)
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Term for when one culture imposes their own cultural values on another
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Cultural counter-transference (Helman)
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Somatisation definition (state who came up with it)
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The translation of dysphoric affect to complaints of physical symptoms, and even illnesses (KLEINMAN)
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Who pointed this out:
Cancer seen as a monster that attacks you from within and destroys you Heart disease metaphors much less dramatic, and more mechanical |
Weiss
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The metaphors peopele ascribe to their illnesses are a way of experiencing and expressing events - they are often a feature of sudent, traumatic events that interrupt the normal flow of human events and may contribute to the nocebo effect
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Becker
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3 levels of cultural behaviour (name and the levels)
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Hall's 'Primary level culture'
What people say they will do What they actually do The belief systems which underlies their behaviour |
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EMs provide explanations for five principle aspects of illness. Who said this and what are they
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Helman 2007
Aetiology, timing of onset, pathophysiological process, natural history and severity |
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Lay sources of information heavily impact illness beliefs and behaviour
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Greenhalgh 1998
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Nature used to be prized for its medicinal qualities (sanatoria) then it changed, but now again nature seen as the antidote to the invisible pollution and factory fumes
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Helman 2003
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Stories in medicine:
Storytelling as healing, healing as storytelling (argues medical sciences is at its base a complex form of storytelling) |
BRODY 2003
'Without a storehouse of case exemplars to draw upon, medicine could neither be taught nor practiced' |
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Doctor should NOT assume the medical story IS the patient's story
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Hunter 1991
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Stories are an essential part as a means of perceiving how scientific knowledge (general) can be applied to the individual (paprticular)
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Hunter 1991
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The placebo illustrates the importance of the illness narrative in healing
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Brody 1980
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Illness experience needs to be given an explanation that the patient finds acceptable
The patient must perceive that she is surrounded by, and can rely upon, a group of caring individuals patient must achieve a sense of mastery/control over the illenss |
Brody 1980
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ASSURING patients that the treatment will work, and transmitting positive messages about the diagnosis may result in twice the cure rate compared to noncomittal colleagues
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Thomas 87
'Sustained partnership' |
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Attributes of causation are often linked to past transgressions in religious stories
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Brody 1980
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Even if there is no cure available, the ability to prognosticate accurately, to tell the story of the future of the illness, maintain a sense of control may, symbolically if not pharmacologiclaly, lead to enhanced healing
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Brody 1980
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Being a patient for a change can open the eyes of doctors
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Kirby prostate surgery (Guardian 2013)
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Giving the illness a name is comforting - it makes 'the thing' an existence apart from the person which can then be struggled against
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Brody
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Patients come to physicians with broken stories as much as with broken bones and broken bodies.
The successful outcome will demand the joint construction of the narrative |
Brody 1980
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If a patient agrees to quit smoking, but cannot construct for herself a coherent and convincing narrative of her future life without cigarettes, it is improbable she will quit
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Brody
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Characteristics of a story (and author)
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Greenhalgh
Runs through time Requires a narrator and listener Focuses on characters Includes an emotional dimension Has a plot and invites interpretation |
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Do not think every problem has a story shaped solution. They should be used when they have the most 'added value'
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Greenhalgh
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