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12 Cards in this Set
- Front
- Back
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Give the main features of a chronic illness
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- Long-term
- No cure as such - Often present with multiple health problems - Uncertainty as to whether the illness will progress - Requirement to adapt |
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How do those with a chronic illness experience uncertainty pre diagnosis?
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- May wait a long time before a diagnosis
- Diagnosis may be deemed non-legitimate - Symptoms may be unexplained |
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How do those with a chronic illness experience uncertainty post-diagnosis?
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Short term - managing unpredictable nature of symptoms (not being able to make plans)
Long term - unpredictable nature of the disease progression |
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What is stigma?
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An attribute that is deeply discrediting
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What is discrediting stigma?
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Visible differences eg facial disfigurement, a wheelchair. May become defined by their condition eg a schizophrenic
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What is discreditable stigma?
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Differences are not apparent immediately eg HIV or depression. Can be managed or hidden to avoid discrediting stigma. Living under threat of exposure can be very stressful
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What is the difference between enacted and felt stigma?
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Enacted - actual, first hand experience of stigma. Persecution or discrimination
Felt - fear a condition will be negatively viewed eg someone going to a GUM clinic. Can cause much anxiety and unhappiness |
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What are the three main strategies to manage stigma?
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1. Passing (attampt to pass as normal)
2. Covering (with a discrediting stigma, may try and cover condition) 3. Withdrawal |
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Why are some chronic illnesses stigmatized?
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- If its seen to be bearers fault/responsibility
- When conditions are contagious - When condition is readily apparent and percieved as repellent, ugly or upsetting - If it may place others in danger (eg schizophrenia) |
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Define identity
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The distinctive characteristics of a persons character which relates to who they are and what is meaningful to them
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What happens to identity during a chronic illness
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- Destabilisation
- Questioning - Reorganisation |
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What is narrative reconstruction?
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Some patients, when faced with a chronic illness, tell a story of how and why it happened to them in order for them to make sense of it in their lives. It is a coping mechanism
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