Cystic Fibrosis Case Study

When dealing with patients with Cystic Fibrosis it is important to know what education materials are needed for the patients and their families, whether it is in a hospital, a home, or in a specialized program. Some facilities in particular, will have educational materials online so that the patient’s families can print them out and review the material. The education materials will include instructions on how to perform the following: active cycles of breathing techniques, autogenic drainage, bacteria and antibiotic resistance, proper order of multiple therapies, huff coughing, cleaning out the nebulizer, pulmonary function testing , vibration PEP therapy, and how to stop spreading germs. The education materials are important especially for the independent Cystic fibrosis patients living at home because they will be doing much of these pulmonary exercises on their own once they get transferred out of the hospital. …show more content…
According to documented research, when transferring CF pediatric patients to adult care of adolescents, it is a huge challenge and burden for patients and their families. Therefore it is important that these CF patients and families get the educational materials needed before the next step. The family and patient will need to be prepared in advance by coaching self management skills of the adolescents and by supporting their parents in letting go. Within the transition process, according to research, transitions clinics have proved to be the best instruments in the process of handling over the patient. Transition clinics are known to have positive effects on the satisfaction of patient care and their parents in the transitioning process (Becher,