National Organization for Rare Disorders

more inexpensive way of producing the drug was developed. This new method involved growing the enzymes in genetically modified cells. As a result of this, the Orphan Drug Act granted Genzyme seven more years of market exclusivity. To this day, the drug’s price has still not diminished and remains as high as it was. In 2004 the company reported an income of $2.2 billion, with approximately one-third of this revenue coming from it’s orphan drug. At a certain point you have to realize that a…

‘Cardiovascular disorders inevitably lead to respiratory disorders, and vice versa’ Cardiovascular disorders (CVDs) are the primary cause of death that occur around the globe every year. According to World Health Organization (WHO), approximately 17.5 million people died of CVDs in the year 2012. This accounts for 31% of all deaths occurred worldwide. In the United Kingdom, around 155,000 deaths are recorded each year due to CVDs. An average of 425 individuals suffer from CVDs and death…

Phenylketonuria Keywords: Phenylanine Phenylketonuria The genetic disorder Phenylketonuria effects approximately 1 in 10,000 to 15,000 newborns annually in the United States…

enters the bloodstream. When you get a vaccination, the fluid of the vaccine goes right into the bloodstream, thus causing, rare disorders when too much organic mercury is placed in the vaccine. Because of health complications, children should not be required to have the MMR…

Knowing the difference between a weed in the backyard and the weed used to intoxicate is becoming increasingly rare (Nature Deficit Disorder Takes Root) as children of the post-millennial years are becoming more disconnected with nature. Nature Deficit Disorder, NDD, was termed in 2005 by researcher and author, Robert Louv in his book, Last Child in the Woods. It is used to describe the nature void people have in their life. NDD isn’t an official medical term but there are significant effects it…

Analyzing the Genetic Gap in Nursing Education The World Health Organization states that “the role of genetic research is indispensable in the ever challenging fields of diagnosis and treatment of genetic disorders, infectious diseases and non-communicable diseases” (WHO, Genetic Research, para 1, n.d). While the importance of genetics in disease and illness management is apparent, the translation into nursing practice remains unclear. A study conducted showed that although nurses and midwives…

Psychopaths are misunderstood in societies across the world, which is perhaps why so many of them end up in prisons, or worse, as our corporate leaders. Media portrayal clashes with psychologists’ efforts to dispel misconceptions and restrains stakeholders, like parole officers or colleagues of psychopathic leaders, from understanding how to prevent the destruction that psychopaths can potentially cause. However, the first step in effectively improving how we interact with psychopaths is…

RETT Syndrome: Living with the Disorder and its Treatment.…

Americans are affected by eating disorders, and that number continues to grow. Five to ten percent of women who are long-term anorexics die from the disease. In turn, anorexia, of all mental illnesses, has the highest death rate. Why, though, is anorexia causing so many deaths? How can we…

DTP, Rubella, and Polio. Since not everyone was immune to these diseases, diseases like Measles tripled in the years 1989-1990. Another disease called Diptheria, which is a rare infectious disease in…