The participants in the focus groups stated that main fears they viewed from the families was the fear of the unknown and the fear of the change in care and their involvement (O 'Sullivan-Oliveira et al., 2014). These thoughts were also discussed by the three families that were interviewed. They stated they felt like they were suddenly being pushed out and forced to find new doctors (Hopper et al., 2014). They also stated that these doctors had different ideas of care that conflicted with what they had been told for the past years as well as that they did not coordinate well with other specialities (Hopper et al.,
The participants in the focus groups stated that main fears they viewed from the families was the fear of the unknown and the fear of the change in care and their involvement (O 'Sullivan-Oliveira et al., 2014). These thoughts were also discussed by the three families that were interviewed. They stated they felt like they were suddenly being pushed out and forced to find new doctors (Hopper et al., 2014). They also stated that these doctors had different ideas of care that conflicted with what they had been told for the past years as well as that they did not coordinate well with other specialities (Hopper et al.,