Patient Engagement

Patient and Carer Engagement
The patients and their families are the units who are involved throughout the full continuum of care. The physicians in contrast are involved in intermitted intervals of the patient care. Because the patient and the families are in continuous association with the health and care, recognizing them as a part of health care system is considered a valuable resource of information. They can provide the actual experience and satisfaction of health care that presented to them. Stories told by patients and their carers carry powerful messages for health provided and medical students. When the patient tell the story of adverse event in which the patient suffered from, better understanding and avoidance strategies
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Health system is built to respect the patient autonomy in regular practice. It is considered unethical for a health professional to interfere with the choices patients make unless the person is unconscious or in a life-threatening situation. From this concept the consent process has developed. The consent process enables the patients (or their carers) to consider all the options they have in relation to their care and treatment, including alternatives to the course of treatment proposed. Consent process has two main phases, informing phase and patient enabling to decide phase. To fulfill both phases, the health professional must provide sufficient and easy to understand information to the patients and their families. Similarly, adequate time should be provided to the patient to absorb information, consult with family and make autonomous choice. So before taking the consent several issues have to be clarified to the patient which include; the diagnosis, the degree of uncertainty, risk involved in treatment or test, costs, the expected recovery rate and …show more content…
Therefore, it is not appropriate to reveal everything to anyone. Some individuals may get overwhelmed, while others may not be able to accept all the facts of the incident. Accordingly, the health professional must assess the ones who are going to be involved in the discussion, and only provide what he/she perceive as appropriate for them. However, not telling everything doesn’t mean to hide the truth, but to present the truth in a tolerable manner. One tool to establish that is the “SPIKES” tool of communication.
Disclosure Barriers and Adverse Events
Open disclosure is honest communication with patients and their families after an adverse event. Care givers who were involved in an adverse event with the patients are advised to go through the disclosure process with the patient. Having a well-constructed communication with the patients and their families after an adverse event will drastically reduce the impact of the trauma. Patients need an explanation, compensation, apology, assurance and honesty.
Even though the disclosure process is an effective communication tool, many health professional won’t organize that. The likely reasons for such denial include; fear of legal actions; fear of confrontation of angry patient; being ashamed for what happened; fear of causing more distress for patient; loss of reputation, job and

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