It’s not expected to become active until sometime in your midlife (40s to 50s) according to rarediseases.info.nih.gov (par. 2). Death usually occurs between seven and 36 months after onset, and according to Maria Trimarchi, total insomnia doesn’t occur until about 9 months after the onset of the disease; “Stage four—the end-stage of FFI—is defined by rapid cognitive decline and dementia. This stage may last as long as six months. In the end, FFI causes the inability to voluntarily move or speak (called akinetic mutism), followed by coma, and ultimately death” (2).
Sleep deprivation and insomnia is not something to take lightly, a lot of people don’t talk about it because they feel they are admitting that they can’t cope, but it is a horrible, debilitating disorder and it will eventually take down even the strongest of minds. There have been numerous cases where people become so depressed and mentally tormented that they committed suicide. So, if you experience sleeplessness for more than one consecutive night then please get help