Sickle-Cell Project Proposal

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St. Jude’s future looks bright. They are considered to be the world leader in providing treatment to children and in making scientific discoveries that will save the lives of more children in the future (GuideStar, n.d.). For example, Dr. Jane Hankins, a hematologist from St. Jude Children’s Research Hospital, along with her team, are heading up a project called the “Sickle Cell Clinical Research and Intervention Program” (SCCRIP) (Walker, 2017). Their goal is to find a cure for the sickle cell disease (Walker, 2017). For this project, children have agreed to return back to St. Jude for periodic checkups throughout their lives. Not only will this help the children learn more about their own health, but it will also help the scientists gain long-term insights into the …show more content…
By following their growth and looking at their DNA, scientists would be able to improve their quality of life and find a cure. Scientists will also be able to categorize the patients’ genes in order to figure out how genetic changes can affect the disease. According to Dr. Hankins, “SCCRIP will help us understand how sickle cell disease progresses over time” (Walker, 2017). St. Jude has already created a comprehensive plan to help patients manage their disease. While at St. Jude, children and teens receive treatment as well as education and counseling for their families until the age of 18. Once turning 18, the care then transfers over to one of the adult hospitals in Memphis. The clinicians in the adult program work with the St. Jude staff to make sure that the patients continue to receive the same level of care. Those that are enrolled in the SCCRIP project will return to the hospital for follow-ups every six years. The data from this project will be used to help improve the health of future generations of children as well as provide information about the best way to make the transition from pediatric to adult care easier

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