Two years ago, my boyfriend, who at the time was not my boyfriend, was diagnosed with this very rare disease. At the time he was going through this awful experience, I did not know him and had not even been living in this state. When I moved to Maine and met him, everyone around him had gone through this experience with him. They all knew of this disease and the details behind it. I always felt left out that out of all people, his own girlfriend did not know about what he went though. He still experiences some sensations because of ADEM including a numb feeling in his legs, a droopy eye when he's tired, constant headaches. I feel guilty that I have not taken time to understand completely what he went though. ADEM is not a common disease.
