The day he was born was a happy day for my family. It was a warm sunny day in July. The entire family was there, baby cousins, cousins, aunts, uncles, grandparents, every form of family there is. As soon as Luke was born everyone was elated. We had a new member of the family, he was perfect. An adorable little bundle of joy. We were all happy and full of excitement. I had a younger brother and my parents had a son. At first I really disliked him because I didn’t want another brother, I liked our family. Then, as soon as he came home I fell in love. I felt like he was the perfect younger brother, a doll that I could play with. Laughing, cooing and being an adorable brother. Babysteps,
A couple years later he …show more content…
My mom set up an appointment and we took Luke in, along with my family. This was probably one of the hardest days of our life’s. The doctors drew some blood and sent the blood to the lab to have it tested. The doctors had told us that we should go out in because it would be a couple hours before the test or done. When we came back to the doctor 's office the doctor said he had the results of the tests. My family and I waited and waited and waited for the results. It was extremely stressful and heartbreaking. When the tests came back the doctors said that Luke had Angelman syndrome. My mothers heart stopped. She had done some research on this particular disability before coming in. She had not fully understood how bad this could be and what it would mean to my …show more content…
Everyday continues to be a struggle, an adventure and hardships. We continue to push through, to support Luke, to continue living through the struggles. To give him his best shot at life. Luke will never be normal. He will never have a family of his own, he will never become independent, never experience the things we do. But with a family like ours those are not important. He does not need his own family when he has us. He will not be independent but we will help him have freedom. He will never experience thing the way we do, but he will experience them in his own way, his way of