My mother is paid hourly, she’s barely been able to make ends meet since she divorced my abusive father four years prior to my diagnosis. She missed hundreds of hours of work that year, which has put her in an unrelenting cycle of debt.
When I was diagnosed, I lived with my mother, two younger sisters and younger brother in a three bedroom apartment. I shared a room with Yitkah while Faigy and my brother, Mordechai, shared the other room. Mordechai moved into the dorms at an all-boys Jewish boarding school right after I was diagnosed, but he still came home on the weekends. The sister I shared a room with suffers from chronic depression and debilitating anxiety. For context, she lays in bed all day and rarely attends school, next year will be her 6th year of high school; additionally, she consistently left trash and food on the floor and refused to clean up. Furthermore, she had several terror-inducing violent outbursts shortly before my diagnosis. …show more content…
I told my mom I would not be undergoing surgery if I had to recover in a room with her, I know this was unfair to my other siblings, but desperate times call for desperate measures. When I decided that, I had no idea how true it would end up being, no one could have predicted the severe muscle damage I sustained or how hard the recovery would be but intuitively I knew I couldn’t fight this if I had no will to live, and being around her made me feel her
When I was diagnosed, I lived with my mother, two younger sisters and younger brother in a three bedroom apartment. I shared a room with Yitkah while Faigy and my brother, Mordechai, shared the other room. Mordechai moved into the dorms at an all-boys Jewish boarding school right after I was diagnosed, but he still came home on the weekends. The sister I shared a room with suffers from chronic depression and debilitating anxiety. For context, she lays in bed all day and rarely attends school, next year will be her 6th year of high school; additionally, she consistently left trash and food on the floor and refused to clean up. Furthermore, she had several terror-inducing violent outbursts shortly before my diagnosis. …show more content…
I told my mom I would not be undergoing surgery if I had to recover in a room with her, I know this was unfair to my other siblings, but desperate times call for desperate measures. When I decided that, I had no idea how true it would end up being, no one could have predicted the severe muscle damage I sustained or how hard the recovery would be but intuitively I knew I couldn’t fight this if I had no will to live, and being around her made me feel her