Informed Consent In Henrietta Lacks Case Study

Decent Essays
One of the fundamental rights of a patient is to protect their privacy, which was violated in Henrietta Lacks case and also she did not give consent for her cells to be extracted. Even though Hela cells have been the foundation for learning about any process that occurs in human cells (Lucey, Nelson & Hutchin, 2009) I still think it is unethical the way the specimen was obtained. The Department of Health and Human Services (DHHS) Revised Common Rule states that informed consent should be presented to individuals and they should understand the risk and benefit of the study. Also, researchers can use leftover specimen for future research without obtaining a consent as long as the identity of the person is unknown (Emanuel & Menikoff, 2011).

Related Documents

  • Improved Essays

    In 1951, it was not illegal to use human tissue cells for research without consent but, publically identifying Mrs. Lacks as the HeLa line source was. Therefore, Mrs. Lacks identifiable health information was transmitted to the world. Today, this breach of privacy is known as a HIPPA violation, The Health Insurance Portability Privacy Act.…

    • 868 Words
    • 4 Pages
    Improved Essays
  • Superior Essays

    The Immortal Life of Henrietta Lacks by Rebecca Skloot tells the story of Henrietta Lack who was an African American women born in 1920 the eighth of ten children. Her mother died when she was the age of four and her father her and the rest of her siblings went to live with her father in Virginia. From there the children were distributed to several relatives as it was too much of a burden for one person to handle ten children. Henrietta lived with Tommy Lacks, her grandfather. They grew up poor in a cabin that was once used by slaves.…

    • 1051 Words
    • 5 Pages
    Superior Essays
  • Improved Essays

    1996 199-2005 The Health Insurance Portability and Accountability Act makes it illegal for medical records to be revealed publicly. Rolland Pattilo names October 11, HeLa Day. 1999 1999: RAND Corporation published report that says 307 million tissue samples from 178 million people are stored in the USA. Most taken without consent.…

    • 667 Words
    • 3 Pages
    Improved Essays
  • Improved Essays

    Pervading the story of Henrietta Lacks and her “immortal cells” was the idea that doctors should be required to obtain informed consent from their patients before conducting any extensive research that could affect the patient. Aside from the HeLa case itself, another situation mentioned in the book was Mo versus Golde, a case where a doctor- David Golde- patented and profited off of the cells of one of his patients- John Moore. Doctor David Golde should have been prosecuted for taking and profiting off of John Moore’s cells without his informed consent. The main and most important reason that John Moore should have received some sort of compensation through the suing of David Golde is that informed consent- keyword: “informed”- was legally…

    • 1247 Words
    • 5 Pages
    Improved Essays
  • Improved Essays

    It is said that the doctors and institutions that had Lacks’ cells did not use them for profit of their own gain. According to Rebecca Skloot in The Immortal Life of Henrietta Lacks she includes statements from doctors on Henrietta’s case and that work at John Hopkins hospital. When the Vice President of Hopkins, Ross Jones, was asked about celebrating Henrietta’s life and contribution to the medical world he stated that he was not sure how Hopkins would be able to help celebrate her life. On page 225 of this book capturing the life and mark that ‘HeLa’ left on the world, Skloot quotes Jones in saying: Hopkins never used the HeLa cells in a commercial venture. Hopkins never sought, nor realized, any money from the development, distribution…

    • 900 Words
    • 4 Pages
    Improved Essays
  • Improved Essays

    Henrietta Lacks Case

    • 773 Words
    • 4 Pages

    The Tissue Issue When it comes to the topic of patient consent on the removal of body tissue, most of us readily agree that consent must be granted before anything is removed from the body. Where this argument usually ends, however, is on the question of whether or not the patient is aware the tissue removal is happening. Whereas some are convinced that at times making the patient unaware of the removal is adequate, others maintain that everything happening in a medical procedure should be known or approved by the patient. In early 1951, Henrietta Lacks, an African American woman under went treatment to remove cervical cancer cells.…

    • 773 Words
    • 4 Pages
    Improved Essays
  • Improved Essays

    Henrietta Lacks Benefits

    • 278 Words
    • 2 Pages

    The question is simple. Is the person’s personal rights over their tissue more important than contributing to science and research to benefit the common good? I believe that a person’s rights to his or her own body is more important. Scientists seem to exploit people for samples of cells only to make a profit.…

    • 278 Words
    • 2 Pages
    Improved Essays
  • Improved Essays

    Essay On Henrietta Lacks

    • 1251 Words
    • 6 Pages

    1. What was the chief injustice of the book? The chief injustice was the lack of informed consent and privacy violation. The scientific community was largely convinced that the HeLa cells had been donated.…

    • 1251 Words
    • 6 Pages
    Improved Essays
  • Improved Essays

    The woman behind the HeLa cells, Henrietta Lacks, holds relevant today and forever. The unethical acts of the scientific and public health community lead to consequences that create a lasting impact on affected communities. Henrietta’s story and other immoral research practices have left a stain on the way disadvantaged groups view medicine, doctors, and public health. This stain will lead to a decrease in the efficacy of their healthcare and in turn hinder them even further.…

    • 1591 Words
    • 7 Pages
    Improved Essays
  • Improved Essays

    The History Of Hela Cells

    • 711 Words
    • 3 Pages

    Henrietta Lacks was a 30- year - old black mother of five when she was diagnosed with cervical cancer in 1951. She went to Johns Hopkins hospital to have the tumor looked at; they took a sample and sent her home. A few weeks later, when Dr. Lawrence Wharton Jr. was prepping Henrietta for treatment he took two samples from her one from the tumor and one from her healthy cervix. He never asked Henrietta if he could take these samples from her. Dr. Wharton Jr. took the samples down to Dr. Gey’s lab; he got excited but thought the cells would just die like all the rest.…

    • 711 Words
    • 3 Pages
    Improved Essays
  • Improved Essays

    In "The Immortal Life of Henrietta Lacks", Rebecca Skloot provides an informational insider on the life of Henrietta Lacks- pointing out the ethical issues in Henrietta's operative. Henrietta, a woman who unknowingly had her tissue cells removed from her cervix by scientists were being used in wide-spread research. After reading "The Immortal Life of Henrietta Lacks", I started researching and came upon an article titled "Patient Safety: The Ethical Imperative". I began making connections that demonstrated and explained the problems that were present in the novel and in the article; however, many people want to argue that what is believed to be "unethical" isn't actually wrong.…

    • 873 Words
    • 4 Pages
    Improved Essays
  • Improved Essays

    Henrietta Lacks Equality

    • 1884 Words
    • 8 Pages

    HeLa cells are the “one of the most important things to ever happen in medicine” (Skloot, 2010). Henrietta’s biopsy aided in the development of the polio vaccine, standard culture mediums, cell cloning, as well as identifying human chromosomes which led to genetic research on Down Syndrome, Klinefelter Syndrome and Turner Syndrome (Skloot, 2010). Scientists were able to use HeLa cells to discover how radiation, nuclear bombs, and extreme gravity all effect humans (Skloot, 2010). HeLa cells were also able to replace animals in some studies of cosmetics and pharmaceuticals (Skloot, 2010). Regardless of the disputes on how the cells were obtained, a consequentialist would view the advancement in science HeLa cells has provided, and secondarily all of the lives she has improved, as reason enough to consider the removal of Henrietta Lacks’ tumor…

    • 1884 Words
    • 8 Pages
    Improved Essays
  • Improved Essays

    The book “The Immortal Life of Henrietta Lacks” dives into the story of an African-American woman who was diagnosed with cervical cancer and died at a young age shortly after, leaving behind 5 children, a husband, and many cousins. When Henrietta was at John Hopkins being treated for her cancer, the doctors took a sliver of her tumor and cultured it to see if they could make the cell “immortal”. This all happened back in the 50’s when colored people weren’t seen as equal citizens to white people. Because of this, doctors withheld a lot of information, and they took the sliver from her without her consent and supposedly never told her about it. (Although there was one colleague who claimed that Gey did in fact tell Henrietta about the cells,…

    • 992 Words
    • 4 Pages
    Improved Essays
  • Improved Essays

    In the novel The Immortal Life of Henrietta Lacks by Rebecca Skloot, many situations arose due to bioethical and morality issues against the patients protection and privacy. Henrietta Lacks was a thirty-one year old, African American woman who developed cervical cancer during the 1950’s. However, samples of her normal and cancerous cells were stolen from here without consent or even knowledge. Tragically, Henrietta died shortly after many chemo treatments and the malignant cancer spread to every organ in her body. The whole while her family knew nothing of these cells that were found to be “immortal,” creating a whole slew of issues.…

    • 1717 Words
    • 7 Pages
    Improved Essays
  • Superior Essays

    One of the most fundamental trust relationships is between a patient and their doctor. Physicians have supposedly earned their trustworthy title because of their extended education and desire to help others. However, this perception is being shattered by physicians violating patients’ trust by not providing all the information needed for making a responsible decision for a person’s health and performing unimaginable procedures. “The Immortal Life of Henrietta Lacks” provides multiple examples of the unethical practice of doctors. When scientists do not recognize their subjects as human beings and their relationship results in an unbalanced power dynamic, their advantageous position often leads to the unethical treatments of subjects, especially…

    • 1566 Words
    • 7 Pages
    Superior Essays