Imagine a life where any type of movement could produce a break in your bone. A world where people could say that you were “made out of glass”. This is the type of situation that people with this lifelong condition must live with on a daily basis. While this disease is rare, I have seen the condition covered in a movie and in a television series. Does anyone remember the movie “Unbreakable” with Bruce Willis and Samuel L. Jackson? Jackson plays a villain who has osteogenesis imperfecta. He is so brittle that he is born with broken arms and legs. With every step he takes he is at risk for injury. What about Grey’s Anatomy? Anybody watch that? Two of the main characters in the show, were expecting a baby with Osteogenesis Imperfecta Type II. The baby dies within the hour of being born due to this disease.
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Type I, is the most common and mildest form. People with this type can live a normal lifespan. Type II is a severe form that often leads to death in the first year of life. Type III is also severe. People with this type have many fractures very early in life and can have severe bone deformities. Many people need to use a wheelchair and often have a somewhat shortened life expectancy. Type IV is similar to type I although people with type IV often need braces or crutches to walk. Life expectancy is normal. There are other types of OI, but they occur very rarely and most are considered subtypes of the moderately severe form type IV. (Medline, 2016)
While researching this for this article assignment I can across different inspiration stories of patients living with this disease. Some people with this rare disease have defined all the odds and have chosen not to “live in a bubble “despite the risk of injury at any given time. It’s ironic that the day referred to as the awareness day of Osteogenesis Imperfecta, is called Wishbone Day because they wish for those whose bones break so easily,
Type I, is the most common and mildest form. People with this type can live a normal lifespan. Type II is a severe form that often leads to death in the first year of life. Type III is also severe. People with this type have many fractures very early in life and can have severe bone deformities. Many people need to use a wheelchair and often have a somewhat shortened life expectancy. Type IV is similar to type I although people with type IV often need braces or crutches to walk. Life expectancy is normal. There are other types of OI, but they occur very rarely and most are considered subtypes of the moderately severe form type IV. (Medline, 2016)
While researching this for this article assignment I can across different inspiration stories of patients living with this disease. Some people with this rare disease have defined all the odds and have chosen not to “live in a bubble “despite the risk of injury at any given time. It’s ironic that the day referred to as the awareness day of Osteogenesis Imperfecta, is called Wishbone Day because they wish for those whose bones break so easily,