Burgen, M., Stam, H., & Pangailia, R. F. (2015, July 10). Prevalence of Fatigue, Pain, and Affective Disorders in Adults With Duchenne Muscular Dystrophy and Their Associations With Quality of Life. In Archives of Physical Medicine and Rehabilitation. Retrieved October 6, 2016.
In this article, Michael Burgen, Henk Stam, and Robert Pangailia explain how muscular dystrophy is a genetic, recessive, neuromuscular disease in which there is a lack of protein dystrophin which helps stabilize muscle cells. With a lack of dystrophin muscle strength is significantly decreased. This disease eventually leads to sever physical disabilities and depend on others to care for them. Over the past few decades’ survival for patients with Muscular dystrophy …show more content…
In this article it goes into detail about the prevalence of pain, and fatigue in adults with Muscular dystrophy. Also this article talks about adults with muscular dystrophy and their problems with daily quality of life. There was a study done to observe if adults with muscular dystrophy experience a significant increase of fatigue, pain, and altered moods. Four subjects all diagnosed with Muscular dystrophy and over 20 years old were selected for the study. Informal caregivers went to the subject’s homes and tested data on physical stimulation such as ambulation, ventilation, hand function, and gastrostomy. There were also tests done for things such as relational status, living situation, work, or educational level. The data shows that fatigue was present in 40.5% of the participants. Pain was prevalent in 73% of the participants. Depression was prevalent in 19% of individuals and anxiety was present in 24% of adults with Muscular dystrophy. These test confirm that adults with neuromuscular diseases do experience high levels of pain, depression, anxiety, and fatigue. During further interviews with adults with Muscular dystrophy showed that most adults had a poor quality of life which then increases
In this article, Michael Burgen, Henk Stam, and Robert Pangailia explain how muscular dystrophy is a genetic, recessive, neuromuscular disease in which there is a lack of protein dystrophin which helps stabilize muscle cells. With a lack of dystrophin muscle strength is significantly decreased. This disease eventually leads to sever physical disabilities and depend on others to care for them. Over the past few decades’ survival for patients with Muscular dystrophy …show more content…
In this article it goes into detail about the prevalence of pain, and fatigue in adults with Muscular dystrophy. Also this article talks about adults with muscular dystrophy and their problems with daily quality of life. There was a study done to observe if adults with muscular dystrophy experience a significant increase of fatigue, pain, and altered moods. Four subjects all diagnosed with Muscular dystrophy and over 20 years old were selected for the study. Informal caregivers went to the subject’s homes and tested data on physical stimulation such as ambulation, ventilation, hand function, and gastrostomy. There were also tests done for things such as relational status, living situation, work, or educational level. The data shows that fatigue was present in 40.5% of the participants. Pain was prevalent in 73% of the participants. Depression was prevalent in 19% of individuals and anxiety was present in 24% of adults with Muscular dystrophy. These test confirm that adults with neuromuscular diseases do experience high levels of pain, depression, anxiety, and fatigue. During further interviews with adults with Muscular dystrophy showed that most adults had a poor quality of life which then increases