Death is one of those inevitable yet most feared topic to talk about, usually by adults In some cases however, more common to those suffering from incurable or serious medical condition, the decision whether to continue medication in the hospital or stay at home and wait until they stop breathing is left on their hands or their loved ones. The End-of-Life Care choice is a serious decision to make; all options should be carefully weighed.
Five-year old Julianna Snow is suffering from a serious case of a fatal neurodegenerative sickness called Charcot-Marie-Tooth disease. According to National Institute of Neurological Disorders and Stroke, Charcot-Marie-Tooth disease (CMT) is a known genetic neurological disorder. 1 out of 2,500 Americans are experiencing it. The illness was first discovered on 1886 by Jean-Martin Charcot and Pierre Marie in Paris, France, and Howard Henry Tooth in Cambridge, England, …show more content…
Michelle Moon, Julianna's mother wrote CNN an email stating, "She made it clear that she doesn't want to go through the hospital again, so we had to let go of that plan because it was selfish." Though her choice was accepted by both of her parents, many people who heard about her story show disagreement on the parent's decision to let a five-year-old decide on her own. Art Caplan, a bioethicist reacted when he read Michelle's blog. "This doesn't sit well with me. It makes me nervous," he utters. "I think a 4-year-old might be capable of deciding what music to hear or what picture book they might want to read. But I think there's zero chance a 4-year-old can understand the concept of death. That kind of thinking doesn't really develop until around age 9 or 10." Caplan further explained how children at Julianna's age often want to please her parents and seeing her suffering must be a hard thing that could have influenced the choice she
Five-year old Julianna Snow is suffering from a serious case of a fatal neurodegenerative sickness called Charcot-Marie-Tooth disease. According to National Institute of Neurological Disorders and Stroke, Charcot-Marie-Tooth disease (CMT) is a known genetic neurological disorder. 1 out of 2,500 Americans are experiencing it. The illness was first discovered on 1886 by Jean-Martin Charcot and Pierre Marie in Paris, France, and Howard Henry Tooth in Cambridge, England, …show more content…
Michelle Moon, Julianna's mother wrote CNN an email stating, "She made it clear that she doesn't want to go through the hospital again, so we had to let go of that plan because it was selfish." Though her choice was accepted by both of her parents, many people who heard about her story show disagreement on the parent's decision to let a five-year-old decide on her own. Art Caplan, a bioethicist reacted when he read Michelle's blog. "This doesn't sit well with me. It makes me nervous," he utters. "I think a 4-year-old might be capable of deciding what music to hear or what picture book they might want to read. But I think there's zero chance a 4-year-old can understand the concept of death. That kind of thinking doesn't really develop until around age 9 or 10." Caplan further explained how children at Julianna's age often want to please her parents and seeing her suffering must be a hard thing that could have influenced the choice she