XX participated in an initial neurodevelopmental evaluation due to his involvement in study protocol, 16-H-0144, Impact of Elastin Mediated Vascular Stiffness on End Organs. XX is from Manchester, England. He was diagnosed with supraventricular aortic stenosis (SVAS) and experienced multiple cardiac arrests and heart surgery associated with this diagnosis. He currently experiences hypertension, difficulty regulating his temperature, difficulties with memory, migraine headaches, GI pain, and anxiety. XX is color blind.
XX’s mother reported no concerns during her pregnancy. XX was born via emergency cesarean-section and weighed 8 pounds at birth. No concerns were noted during his neonatal period or early development. XX reportedly attained his motor, speech, and linguistic milestones within normal age-level expectation. Specifically, he smiled at 5 ½ weeks, held his head up at 2 months, crawled at 7 months, and cruised at 9 months of age. Other milestones were …show more content…
They expressed concerns regarding his reading and reading comprehension in both Hebrew and English. In addition, they reported concerns about his memory, noting that he gets lost going to school (though he has attended the same school for several years), has difficulty remember things that improves with recall assistance, and struggles with time estimation (e.g., estimating how long something took or when it occurred). XX reportedly forgets to eat his lunch, bring school forms to his parents, and frequently misplaces things. He was described as having trouble initiating activities and reportedly needs a prompt from an adult to begin a task. XX is easily distracted and adults and teachers often have to work to keep him focused. He reportedly does not exhibit high activity; however, his physical activity is reportedly limited by pain in his legs, stomach,
XX’s mother reported no concerns during her pregnancy. XX was born via emergency cesarean-section and weighed 8 pounds at birth. No concerns were noted during his neonatal period or early development. XX reportedly attained his motor, speech, and linguistic milestones within normal age-level expectation. Specifically, he smiled at 5 ½ weeks, held his head up at 2 months, crawled at 7 months, and cruised at 9 months of age. Other milestones were …show more content…
They expressed concerns regarding his reading and reading comprehension in both Hebrew and English. In addition, they reported concerns about his memory, noting that he gets lost going to school (though he has attended the same school for several years), has difficulty remember things that improves with recall assistance, and struggles with time estimation (e.g., estimating how long something took or when it occurred). XX reportedly forgets to eat his lunch, bring school forms to his parents, and frequently misplaces things. He was described as having trouble initiating activities and reportedly needs a prompt from an adult to begin a task. XX is easily distracted and adults and teachers often have to work to keep him focused. He reportedly does not exhibit high activity; however, his physical activity is reportedly limited by pain in his legs, stomach,