Darren Billing was admitted to community palliative care services due to progressive motor neuron disease that he was diagnosed with 12 months ago. Darren is still able to walk; however, he has already lost the function in the left arm, and is losing the function in the right arm. Darren and his ex-wife split 7 years ago, and he is living with his two sons, 13-year-old boy Mason and 10-year-old boy Jack. As Darren is unable to perform most activities of daily living, he depends on Jack for almost all routine activities such as meal preparation, making tea and dressing. Jack has decided to devote himself to the jobs because Mason has found it more difficult to deal with Darren’s disease. Jack reported he sometimes finds it difficult to perform some unwanted tasks. Darren is aware of his deteriorating prognosis, and concerned about his unpredictable and uncontrollable physical deterioration. Darren is in the downward trajectory phase, which …show more content…
The nursing goal of management for Darren’s downward trajectory phase is to improve the quality of life until death by facilitating self-management that involves adjustments and adaptations to the physical deterioration in the biography and daily activities.
Introduction
People with chronic, life-limiting conditions require a palliative approach that aims to improve or maintain the quality of life until death for the clients and their family by alleviating their distress through early identification and assessment and treatment of physical, psychosocial and spiritual needs (World Health Organisation [WHO] 2015). Self-management in palliative care is important because it empowers the clients with progressive chronic conditions to acknowledge the impact of