In research, integrity plays a major role in all phases of research. Researchers must strictly adhere to all of the guidelines that have been set forth. Privacy in research refers to the rights research participants have knowing that they don’t have to worry about their rights being intruded upon or their information whether physical, behavioral, or intellectual is violated. Research participants decide what information to share and what information to keep private (Jones, 2012). Anonymity in research refers to keeping the identity of respondents protected by not collecting identifying information that can link a respondent to their data. Anonymity can also refer to keeping the data collected on participants safeguarded (Jones, 2012). Confidentiality in research refers to keeping the participants’ individual responses protected by limiting the number of people who know their identity and by using protected identifiers (Jones, 2012). The confidentiality agreement that is made between the researcher and the participant helps to establish trust and encourages participants to take part in the study. Data cannot be both anonymous and confidential, it must have one or the other but not both. A good way to distinguish the two is data that has …show more content…
Investigators must be ready to end the experiment at any stage if there is cause to believe that continuing the experiment is likely to result in injury, disability, or death to the subject (National Institute of Health, 2008). Although the Nuremberg Code specifically referred to incidents that occurred during the Nuremberg trial, it was never formally adopted by any state or international agency, but has set the standard for other research related directives such as the Belmont Report (to be discussed later), Declaration of Helsinki, and the Beecher Report, and FDA regulations (among others) (National Institute of Health, 2008). Another research atrocity, occurring on U.S. soil was the Syphilis Study at Tuskegee. This study was conducted by the U.S. Public Health Services in Tuskegee, Alabama in 1932. The study was originally slated to last six months but lasted for 40 years instead and involved 600 African American men. Researchers failed to obtain informed consent from the men, and led them to believe they were being treated for bad blood, which by the participants’ belief was the reason for a lot of ailments such as anemia, fatigue, and syphilis (Brandt, 1978). Informed consent is a legally-effective, voluntary agreement that is given by a prospective research participant following comprehension and consideration of all relevant information pertinent to the decision to participate in a study (National Institute of Health,