A total of seven people reside in the household. I am one of the five children in the home. I was diagnosed with a genetic life-threatening disease called, Cystic Fibrosis (CF) and many other problems such as bronchiectasis, atelectasis pulmonary, chronic sinusitis, pancreatic insufficiency, GERD, hiatal hernia, vitamin E deficiency, and many more. CF is a genetic disease that affects the exocrine glands. Consequently, this disease causes an imbalance at the cellular level between sodium and chloride. As a result, all of my bodily systems are affected but primarily the lungs and gastrointestinal systems. CF patients’ expectancy of life is in the mid-30s. Due to my disease our expenses are quite high and our income is very low. In addition,
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Even though Izabella does not have the Cystic Fibrosis label; she is being treated as one. The only problem with Izabella is that since she does not have the official CF label, it is more difficult to get her medications and treatments. In addition, Izabella has a chronic intestinal bacterial overgrowth due to the small intestine shortage because of her surgeries and a meconium ileus/obstruction of the vowel and rupture in another part of the intestine when she born. Izabella’s present diseases are: Atelectasis, bronchiectasis, chronic lung disease, and history of recurrent pneumonia, GERD, Vitamin D deficiency, and Hiatal Hernia. Due to all these problems, specially the bacteria overgrowth, shortage of small intestine, and lung disease lead her to an extreme energy consumption and the increase to eat continuously because whatever she eats it is always a struggle to keep it down to get metabolized. Added to this, Izabella struggles with her status in school as a special education student. Her cognitive disorders are believed to have been a result of her earlier hospitalizations (severe thrombocytopenia, severe sepsis, kidney failure, pneumothorax, and many more problems). Also, she had an oxygen saturation of only 20% due to the three times that she coded and needed CPR, which lead to her brain damage. From this, we have to spend extra on everything from special food supplements that will hopefully help her mental development and also some on special books and learning tools for her. In addition to the herbs and medications, she requires prebiotics and probiotics for her health regimen in order to maintain a healthy flora in her gout. Both of us need constant maintenance all the time. For example, every year we need a “tune up.” This tune up consists of giving strong IV antibiotics to keep us from recurrent lung infections. But every time my parents
Even though Izabella does not have the Cystic Fibrosis label; she is being treated as one. The only problem with Izabella is that since she does not have the official CF label, it is more difficult to get her medications and treatments. In addition, Izabella has a chronic intestinal bacterial overgrowth due to the small intestine shortage because of her surgeries and a meconium ileus/obstruction of the vowel and rupture in another part of the intestine when she born. Izabella’s present diseases are: Atelectasis, bronchiectasis, chronic lung disease, and history of recurrent pneumonia, GERD, Vitamin D deficiency, and Hiatal Hernia. Due to all these problems, specially the bacteria overgrowth, shortage of small intestine, and lung disease lead her to an extreme energy consumption and the increase to eat continuously because whatever she eats it is always a struggle to keep it down to get metabolized. Added to this, Izabella struggles with her status in school as a special education student. Her cognitive disorders are believed to have been a result of her earlier hospitalizations (severe thrombocytopenia, severe sepsis, kidney failure, pneumothorax, and many more problems). Also, she had an oxygen saturation of only 20% due to the three times that she coded and needed CPR, which lead to her brain damage. From this, we have to spend extra on everything from special food supplements that will hopefully help her mental development and also some on special books and learning tools for her. In addition to the herbs and medications, she requires prebiotics and probiotics for her health regimen in order to maintain a healthy flora in her gout. Both of us need constant maintenance all the time. For example, every year we need a “tune up.” This tune up consists of giving strong IV antibiotics to keep us from recurrent lung infections. But every time my parents