Challenges Mothers Have Faced: The most challenge that was reported by mothers was being exhausted especially during the time of painful crisis. Feeling exhausted results from not getting enough sleep due to worrying about the child’s health. Additionally, mothers provide all the child’s needs during the night such as medication and food, and help the child to sleep when he is not able to sleep due to severe pain. Participant # 6 suggested that the only time she could take a nap during the painful crisis is when her daughter, 11 years old, receives pain relief shot. According to participant #3:
I don’t get enough sleep during the painful crisis. When my son is admitted to the hospital, I feel worried about my other children at home, and my …show more content…
We all repeated the blood test just to make sure, and we all had sickle cell trait and my daughter has SCD.
According to Participant #5:
I thought my husband did not have sickle cell trait until we had our son. I have SCD and I suffer from the complications; and I do not want my kids to have the same experience with this disease.
Further, even though the Saudi community was not aware about blood marriage and inherited blood disease, some mothers with SCD tried hard to plan, before they got married, to marry to men who do not have Sickle Cell trait. However, some issues were beyond their control especially when both partners got the unclear blood results. Participant # 7 stated:
Although my father worked at popular hospital in Saudi Arabia, the hospital did not inform us we have sickle cell trait. When we had our daughter and the blood test showed that she has SCD; we all were shocked. I told my husband that the hospital lie to me. I repeated the blood test three times. It is hard to me to believe that our daughter has SCD, but I don’t have any option. All we can do is take care of …show more content…
On one hand, the complications depend on the severity of sickle cell disease. Individuals with high percentage of SCD are at higher risk to develop these complications. On the other hand, each physical complication related to SCD might be a result of lack of proper management of SCD. Proper nutrition, mental health and physical activity can help to minimize the physical complication.
Case Study of a Family Who Has a Member Died from SCD: Although the main purpose of this study to understand how families use social support to help minimize the psychological and physical complications related to SCD, and factors that influence mothers to provide social support for their children; there was a participant who had a niece died from stroke as result of complication related to SCD. the death of a family member who died from this disease affects the whole family in the way of their perception of life and death, the relationship the family members together, as well as the management of this disease.
Implications for
I don’t get enough sleep during the painful crisis. When my son is admitted to the hospital, I feel worried about my other children at home, and my …show more content…
We all repeated the blood test just to make sure, and we all had sickle cell trait and my daughter has SCD.
According to Participant #5:
I thought my husband did not have sickle cell trait until we had our son. I have SCD and I suffer from the complications; and I do not want my kids to have the same experience with this disease.
Further, even though the Saudi community was not aware about blood marriage and inherited blood disease, some mothers with SCD tried hard to plan, before they got married, to marry to men who do not have Sickle Cell trait. However, some issues were beyond their control especially when both partners got the unclear blood results. Participant # 7 stated:
Although my father worked at popular hospital in Saudi Arabia, the hospital did not inform us we have sickle cell trait. When we had our daughter and the blood test showed that she has SCD; we all were shocked. I told my husband that the hospital lie to me. I repeated the blood test three times. It is hard to me to believe that our daughter has SCD, but I don’t have any option. All we can do is take care of …show more content…
On one hand, the complications depend on the severity of sickle cell disease. Individuals with high percentage of SCD are at higher risk to develop these complications. On the other hand, each physical complication related to SCD might be a result of lack of proper management of SCD. Proper nutrition, mental health and physical activity can help to minimize the physical complication.
Case Study of a Family Who Has a Member Died from SCD: Although the main purpose of this study to understand how families use social support to help minimize the psychological and physical complications related to SCD, and factors that influence mothers to provide social support for their children; there was a participant who had a niece died from stroke as result of complication related to SCD. the death of a family member who died from this disease affects the whole family in the way of their perception of life and death, the relationship the family members together, as well as the management of this disease.
Implications for