Behavior Sibling Case Study

Improved Essays
The Ethical Dilemmas surrounding ‘Savior Siblings’
In 2002, Jayson and Michelle Whitaker, the parents of Charlie Whitaker, their then four year old son, faced a decision that would test the bounds of both modern medicine and the ethical limitations which govern it. When he was twelve weeks old, Charlie had been diagnosed with Diamond-Blackfan Anemia (DBA), a rare blood disease which prevents the body from creating sufficient red blood cells; requiring frequent treatments which prove painful and exhaustive for both the recipient and in this case the helpless, on-looking parents.
To stay alive, Charlie received recurring blood transfusions and almost nightly drug infusions. Distraught with their son’s ailment, traumatizing treatment and the

Related Documents

  • Improved Essays

    John Enzenaur Case Study

    • 583 Words
    • 3 Pages

    John Enzenaur began feeling sick the week of Christmas that Monday. When his symptoms had not slowed down by Saturday he went to urgent care. During his visit they drew blood and told him he had a flu, they told him to go home. The next day, the day before Christmas urgent care doctor called to ask him to go to the emergency room, if he was still feeling ill.…

    • 583 Words
    • 3 Pages
    Improved Essays
  • Improved Essays

    Specifically, Henrietta was denied the right to a voice in the decision of being a donor. The next ethical issue to be discussed is the coercion of Day, Henrietta’s husband, by doctors at Johns Hopkins. After Henrietta’s death, “ the way Day remembers it , someone frim Hopkins called to tell him Henrietta died, and to ask permission for an autopsy, and Day said no” (p.89). Later that day, Day went to Hopkins and the doctors again asked permission to do an autopsy pursing this further, they told Day “they wanted to run tests that might help his children someday” (p.90).…

    • 764 Words
    • 4 Pages
    Improved Essays
  • Improved Essays

    More than sixteen years ago, on a chilly winter day with light snow on the ground, a little baby girl was brought into the world. That little girl has since been known as Sarah Madelyn Haynes. On February 8, 2000, at 9:53 am, Dawn Haynes, Sarah’s mother, gave birth to Sarah at Concord Hospital. Larry Haynes, Sarah’s father, was not present at the delivery as he was afraid of blood. After the birth of Sarah, a large baby, Dawn hemorrhaged badly and was kept overnight.…

    • 1042 Words
    • 5 Pages
    Improved Essays
  • Improved Essays

    Such decisions regarding patients with severe and deteriorating illness should be processed with respect to the patient’s condition becoming worse with time. Having an ethics board or a medical community to alleviate the pressure of a single doctor making a decision for a patient who is not able to act autonomously would allow for a treatment plan to be determined earlier. In Mary’s case, the court ruling prevented the doctor’s from acting to save her…

    • 815 Words
    • 4 Pages
    Improved Essays
  • Improved Essays

    ‘That was then, this is now’. Write about a past event or moment in your life and how it has affected you. Tayler Bambrick 5,187 people died due to brain cancer in 2012. And my dad was one of them. One of the souls stolen from this world before their time.…

    • 1027 Words
    • 5 Pages
    Improved Essays
  • Decent Essays

    Anthony Stokes

    • 543 Words
    • 3 Pages

    Anthony Stokes, a previously healthy 15-year old boy, was denied a heart transplant by Children’s Healthcare of Atlanta at Egleston in 2013 causing a great deal of discussion and controversy. According to the hospital, they follow a strict set of guidelines in order to decide who in their care receives a transplant of any sort and Stokes did not fit those guidelines due to his history of noncompliance, although they did not specify further on their guidelines it seemed their main concern was that Stokes would not be through in taking his medicine, which he would have to to for the rest of his life in order for his body to not reject his heart, and go to his follow up appointments to ensure everything went and is going well in his body. However, according to Stokes’ mother her son was judged on “tattoos and an ankle bracelet” making it a case of prejudice instead of simply a sad outcome which any other patient could have also received. The story took to the internet, where we know a variety of uneducated and easily persuaded people often spend their time, and people were incredibly upset. The anger from the people was seemingly only because a young boy was being denied a heart, but there is more to it and we can’t deny it, and part of that would be race.…

    • 543 Words
    • 3 Pages
    Decent Essays
  • Improved Essays

    Doctors are expected to give care to all their patients without judging their actions or private life. Similar to Antigone, I have been presented with a moral dilemma in which the options include saving the life of my best friend’s thirteen-year-old son, or saving the life of a woman that developed cirrhosis of the liver due to her abuse of alcohol and drugs. I have chosen to not alter the information that would place my friend’s son at the top of the transplant list, due to the responsibility and the oath I took, to care for every one of my patients. It would be dishonoring to only think of my friend and how the situation affects me personally, and not consider the woman’s family and how the sickness of their loved one affects them. Due to my selfishness, I would be punished by losing the ability to save more lives, and do what I…

    • 658 Words
    • 3 Pages
    Improved Essays
  • Improved Essays

    The Family Attachment Scheme brought upon a unique opportunity to view the indirect effects of the healthcare system through the voice of the patient themselves or in our case through the words of the patient’s mother. Ultimately, demonstrating the underlying complexity that medicine extends beyond the hospital, illustrating the behind the scene struggles an individual faces living with a rare disease, affecting not only the patient but the patients family, lifestyle and the intertwined social factors that accompany a rare disease. Conversely, I had the opportunity to see firsthand the positive influence a doctor can have on the patient and its impact on the family while analyzing the importance of the duties of a doctor in terms of the GMC to provide the best possible care for every future patient. Prior to the initial FAS visit, numerous thoughts crossed my mind, wondering how the interactions would take place and subconsciously wondering how I would come across as a clinical communicator. Throughout the duration of the FAS, I believe I had the chance to refine any prior communication skills while striving towards the end goal of becoming a competent clinical communicator.…

    • 479 Words
    • 2 Pages
    Improved Essays
  • Superior Essays

    WHY DO INDIVIDUALS STAY IN ABUSIVE RELATIONSHIPS? Fear · Fear of further abuse to oneself as well as fear for the children who may already be part of the abusive pattern. · Feelings of guilt for somehow being responsible for the batterer’s unhappiness and anger. · The individual may feel they somehow provoked them or is inadequate as a spouse and parent. · Many abused individuals watched their mothers tolerate abuse and may have grown up with an overwhelming sense of shame.…

    • 1432 Words
    • 6 Pages
    Superior Essays
  • Improved Essays

    ICU Field Experience

    • 586 Words
    • 3 Pages

    My field supervisor was out sick today so I get to experience a new area of the hospital today, the ICU. It was so interesting to see how differently the ICU social worker, Lynne, works in comparison to Jamie. There is a lot less patient interaction since the ICU patients are in much worse conditions and a majority of them were not even conscious. Lynne’s case load seems much more complicated as she works with families and other agencies.…

    • 586 Words
    • 3 Pages
    Improved Essays
  • Improved Essays

    When reading “Tomorrow's Children”, the following statement about Ruthie’s story was one that made me jump to conclusions about people similar to Ruthie: “What makes Ruthie’s performance even more extraordinary is her DNA. Because of a misspelling in one of her genes, she has albinism…” (Hayden 402) When I read this, I immediately wondered how being ‘pale’ would stop Ruthie from being an accomplished basketball player. Little did I know that albinism is associated with being legally blind.…

    • 501 Words
    • 3 Pages
    Improved Essays
  • Improved Essays

    Pernicious Anemia

    • 630 Words
    • 3 Pages

    During this time, many doctors were trying to cure a disease call pernicious anemia. It is a disease that is caused by a deficiency. People with this disease have unnaturally yellow skin because they don’t produce enough red blood cells, prematurely gray hair, walk unsteadily, are short of breath, endure chronically swollen tongues, and suffer from numbness in their hands and feet. The new wave of research began after World War I, and doctors now took advantage of scientific method and new medical technologies. Doctors examined blood samples of anemic patients and found that they had low amounts of red blood cells.…

    • 630 Words
    • 3 Pages
    Improved Essays
  • Superior Essays

    The case of Stephen Dawson raised many ethical issues. According to our course notes ethics is understanding what is right, wrong, good, and bad and also what ways of living are good, bad, right or wrong. The most significant issues in this case are firstly, that the institution for long term care and rehabilitation for physically disabled children placed Stephen in foster care because his condition was just too severe and they decided that somebody else would be more beneficial from their treatment and help. Secondly, Stephen's parents initially gave permission for the doctors to go ahead with the second shunt operation required to save Stephen's life but shortly after changed their minds because they thought it would just be better off for Steven to be allowed to die. Thirdly, The superintendent of family and child services did not agree with the parents decision and fought for custody of Stephen, eventually succeeding and approving…

    • 1484 Words
    • 6 Pages
    Superior Essays
  • Improved Essays

    Fanconi Anemia (FA) is a largely misunderstood and currently incurable genetic blood disease, affecting one out of every 131,000 births annually. Some of the disease’s early symptoms are vague and may be misdiagnosed as something as common as the flu. Florida State University’s head coach, Jimbo Fisher, and his wife, Candi, spent the last several years becoming highly acquainted with the rare blood disease after their youngest son, Ethan, was diagnosed with FA about four years ago at the age of five. The diagnosis for the Fisher family is a parent’s worse nightmare - an almost certainty that the parent will outlive their child.…

    • 1880 Words
    • 8 Pages
    Improved Essays
  • Improved Essays

    St. Jude’s future looks bright. They are considered to be the world leader in providing treatment to children and in making scientific discoveries that will save the lives of more children in the future (GuideStar, n.d.). For example, Dr. Jane Hankins, a hematologist from St. Jude Children’s Research Hospital, along with her team, are heading up a project called the “Sickle Cell Clinical Research and Intervention Program” (SCCRIP) (Walker, 2017). Their goal is to find a cure for the sickle cell disease (Walker, 2017).…

    • 465 Words
    • 2 Pages
    Improved Essays