Essay on Analysis Of Shane Burcaw 's ' The Novel '

781 Words Sep 30th, 2015 4 Pages
In his book author Shane Burcaw tells his story in a unique way of facing the challenges of having Spinal Muscular Dystrophy. Burcaw is a witty and hilarious with no type of filter 22 year old boy who lives every day to the fullest and stays true to his motto you only live once. This is not your typical story of a how a teen overcomes all obstacles and beats the odds. Burcaw tells it how it is and doesn’t sugar coat anything about how his life has been, in fact he has a camera crew following him around and taping the most intimate moments of his life. Burcaw is being filmed for a documentary about inaugural speaking tour of his non-profit organization: Laughing at My Nightmare, Inc. In a story that most people think that would be about inspiration and motivation,
In his book Burcaw didn’t really go into specifics on how he processed the fact that he had this physical disability. He does however give us a little insight on how his parents felt about this experience. Since he was only two years old when they had diagnosed him with Spinal Muscular Dystrophy (SMD), he explained that it was really difficult on his parents when they found out the diagnoses, but acceptance on their part “came almost naturally.” His parents weren’t going let this disability ruin the life that they had envisioned for themselves and their son. Grief and sorrow didn’t make a long appearance, they quickly realized that life is a beautiful and it should be lived to the fullest.
Burcaw tells shares…

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