November 19 2000, I was born in the small town of Detroit Lakes. When I was seen for the first time they knew something was wrong, something didn't seem right. The doctors took me away to take test, only to figure out the worst of news. They went back to the room where my parents were told to sit in, and broke the news to them. They told them I had a rare disease called “ginger.” They said I didn't have much time, they estimated about ten years. They said my body would start deteriorating by the age of three. My parents were devastated. Not knowing what to do they took me home and …show more content…
It's my fifth birthday, and I'm as healthy as any other kid. It was so far a miracle, but my parents didn't want to get too happy about the situation. They knew it could all go wrong in the blink of an eye. So far tho nothing seemed to go wrong, the doctors didn't know how I was so healthy. Years went by, and I had no issues adapting to normal life. I went to school, and learned about the many things in life. I was able to join sports, and do things like any other kid even know I had a rare condition. There was still things that made my days I lived harder, like every morning having to take my Ginger medication, or the monthly doctor appointments that later stopped because I was healthy enough to where they didn’t worry anymore. I couldn't go out in the sun as long as other kids. Yes these things did affect me in a negative way, but also in a positive