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14 Cards in this Set

  • Front
  • Back
two central ideas of eugenics
-social differences across race and class are attributable to biology and inheritance
- the physical, mental and behavioral qualities of humankind are improvable by suitable management and manipulation of hereditary essence
Robert Merton's Norms of Science
CUDOS
communism
universalism
disinterestedness
organized skepticism
Mendelsohn's background issues from recombinant DNA reading
- not always clear between basic/applied as guide to accountability
- interests withing science may diverge from public interest
- rights of those put at risk by research not well formulated
- responsibility v. accountability
indigenous critiques of the HGDP
-biopiracy framing (financial exploitation of patents on cell lines)
- violence of objectification
- lack of voice
- lack of control over project
what did model ethical protocol (MEP) propose
-individual informed consent
- ethical review board
- group consent
origins of the health sector database
enrolling iceland's natural and social history, venture capitalists, politicians and the public
ethical perspectives on pharmacogenomics
- design of clinical trials
- research-subject stratification issues
- new social risks
- economic issues
general-purpose means
useful and valuable in carrying out nearly any plan or life or set of aims that humans typically have
right to an open future
must help children develop practical judgement and autonomous choice to give them a choice of a reasonable array of different life plans
property concepts
kinds, law, moral theories, dignity restrictions
requirements for patentability
-limits on subject matter
-must show:novelty, utility, non-obviousness
-disclosure and description to enable others to make technological advances
boundary work
instances in which boundaries or other divisions between science and politics are created, advocated, attacked or reinforced, often have high political stakes for participants
phases AIDS activism
1: exposing the politics of expert space
2: credibility tactics, become activist-experts
3: achieve seat on committees
credibility tactics of AIDS activism
- familiarity with language
- establish themselves as representatives
- bring together methodological and political arguments
- took sides in pre-existing debates