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14 Cards in this Set
- Front
- Back
two central ideas of eugenics
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-social differences across race and class are attributable to biology and inheritance
- the physical, mental and behavioral qualities of humankind are improvable by suitable management and manipulation of hereditary essence |
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Robert Merton's Norms of Science
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CUDOS
communism universalism disinterestedness organized skepticism |
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Mendelsohn's background issues from recombinant DNA reading
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- not always clear between basic/applied as guide to accountability
- interests withing science may diverge from public interest - rights of those put at risk by research not well formulated - responsibility v. accountability |
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indigenous critiques of the HGDP
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-biopiracy framing (financial exploitation of patents on cell lines)
- violence of objectification - lack of voice - lack of control over project |
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what did model ethical protocol (MEP) propose
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-individual informed consent
- ethical review board - group consent |
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origins of the health sector database
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enrolling iceland's natural and social history, venture capitalists, politicians and the public
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ethical perspectives on pharmacogenomics
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- design of clinical trials
- research-subject stratification issues - new social risks - economic issues |
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general-purpose means
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useful and valuable in carrying out nearly any plan or life or set of aims that humans typically have
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right to an open future
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must help children develop practical judgement and autonomous choice to give them a choice of a reasonable array of different life plans
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property concepts
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kinds, law, moral theories, dignity restrictions
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requirements for patentability
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-limits on subject matter
-must show:novelty, utility, non-obviousness -disclosure and description to enable others to make technological advances |
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boundary work
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instances in which boundaries or other divisions between science and politics are created, advocated, attacked or reinforced, often have high political stakes for participants
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phases AIDS activism
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1: exposing the politics of expert space
2: credibility tactics, become activist-experts 3: achieve seat on committees |
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credibility tactics of AIDS activism
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- familiarity with language
- establish themselves as representatives - bring together methodological and political arguments - took sides in pre-existing debates |