Personal Narrative: Neurofibromatosis

Neurofibromatosis ! “ The most common disorder you’ve never heard of”. This was not suppose to happen to me. From what I thought I just had a struggle in school and that my so called cafe nola spots where just birthmarks, I just had over 50 of them. There were no other signs. How was I born with this disorder and not made aware of it until the age ten. Well here we go the story from where it all became real. I was starting the fourth grade at a new school Cross Creek Charter Academy. This was going to be a new start of making friends . My old school was just trouble for me. Got teased and bullied and did not have much friends. Now it is my turn to restart . I was the chubby kid and I wanted to change that , so my mom set up appointments to go and see the healthy weight clinic at Helen Devos Children's Hospital. I was excited something else I can do to start new. It all started at to go really well. I was getting materials to help and talking to dietitians and the healthy weight doctor . Was about 4 appointments in everything is going really good. The doctor came in to see how I was doing and to make sure everything was going good , at that time it was nothing to worry about except getting my weight off. So after he realized …show more content…
I was feeling like that dy was never going to come soon enough. Once the two weeks came we were finally going to find out everything we wanted to know. The doctor walked in and by the look of his face seems everything could not be too bad. The first thing was to hack my nose and make sure everything was okay. After that he told us “It was a tumor and it was tested the good news is it's not cancer the not as good news it is a neurofibromatosis tumor and that it is positive that I have NF”. I was happy we finally got answers and that it was not cancer. I wished I did not have NF but was happy we could find it out so we know what we have to do now and see how the feature holds with knowing i have