Essay On Lowe Syndrome

When I was in fourth grade I participated in an autistic awareness group. I was one of five leaders in our organization. We went from class to class talking about how autistic children are people too and how they only want to be accepted. We talked to all grades ranging from kindergarten to fifth grade. We would enter the classroom and talk to the kids for about an hour each time. The other children would ask questions about the autistic children and then we would leave. I volunteered to participate because I have a younger brother who has a rare syndrome called Oculocerebrorenal syndrome, also known as Lowe syndrome. I wanted the other children to learn about them and how they behave. This syndrome mainly affects males but, there are rare …show more content…
They throw temper tantrums at even the smallest things. This is where I learned patience and control. To this day there is no cure for Lowe syndrome. I hope one day that scientists will be able to create a cure and help all these children heal and live happy lives. Every two years Lowe Syndrome Association holds conferences in different states so that new parents of children with Lowe syndrome can learn about it and how to deal with them. They can also donate money to the research that goes into making a cure. The most recent conference was held in Washington D.C. in 2015. My brother was and still is the reason why I became the leader I am today. If he had not been in my life I would not have gained the courage to go in front of all those kids and give a speech about him and other autistic children. I would have been a shy little girl who sat in the back of the class and said nothing. Now I am very outspoken and unafraid to give presentations in front of the class. My brother is my reason for success. I am very proud to call him my brother and I am glad that I had the opportunity to teach others about their lives. I hope that the children I had the opportunity to talk to understand the truth about autistic